Privacy Policy

Who we are

We are a 501(c)(3) nonprofit organization dedicated to improving the quality of life for anyone who has or will have intestinal or urinary diversionary surgery. Our goal is to support new and seasoned ostomates in leading a happy, active life. Our website address is: https://phoenixostomy.org/

What personal data we collect and how we collect it

We collect different types of information from, and about, users of our Webiste, including information by which you may be personally identified, such as your name, home or business address, e-mail address and telephone number. We also collect information about yur internet connection, the equipment you use to access our Website and usage details.

We collect this information:

  • Directly from you when you provide it to us
  • Automatically as you navigate through the Website. Information collected automatically may include usage details, IP addresses and information collected through cookies, web beacons, or other tracking technologies.

Information you provide to us

Contact forms

Information that you provide by filling in forms on our Website. This includes information provided at the time of filling out the form to join our support group or asking us a question. We may also ask you for information when you report a problem with our Website. We use this information only to answer your question or to add you to our monthly newsletter mailing list. We will not market to you nor do we sell or share your contact information with any third parties. 

Information we collect through automatic data collection technologies

As you navigate through and interact with our Website we may use automatic data collection technolgies to collect certain information about your equipment, browsing actions, and patterns, including:
  • Details of your visits to our Website, including traffic data, location data, logs and other communication data and the resources that you access and use on the Website
  • Information about your computer and internet connection, including your IP address, operating system and browser type

Technology we use for this automatic data collection may include

Cookies (or browser cookies). A cookies is a small file placed on the hard drive of your computer. You may refuse to accept browser cookies by activating the appropriate setting on your browser. However, if you select this setting you may be unable to access certain parts of our Website. Unless you have adjusted your browser setting so that it will refuse cookies, our system will issue cookies when you direct your browser to our Website.

Third-party use of cookies and other tracking technologies

Embedded content from other websites Articles on this site may include embedded content (e.g. videos, images, articles, etc.). Embedded content from other websites behaves in the exact same way as if the visitor has visited the other website. These websites may collect data about you, use cookies, embed additional third-party tracking, and monitor your interaction with that embedded content, including tracking your interaction with the embedded content if you have an account and are logged in to that website. If you have any questions about how embedded Websites use your information, you should contact them directly or carefully review the terms of service and privacy statements on their web pages.

What we do with the information we collect

We may use information that we collect about you or that you provide to us, including and Personal Identifiable Information (PII):
  • To present our Website and its contents to you
  • To send you our newlsetter
  • To notify you of events we think that will be of interest to you
  • To notify you about changes to our Website
  • In any other way we may describe when you provide the information
  • For any other purpose with your consent
We may display logos and hyperlinks enabling access to select third-party sites. Among the third-party affiliates are:
  • United Ostomy Associates Of America (UOAA)
  • Ostomy clinics in the Phoenix metropolitan area
  • Wound, Ostomy & Continence Nurses Society (WOCN) 
  • Select ostomy supply vendors
We do not share your data with anyone. Data we collect is to enable us to provide better support and services to you.

How long we retain your data

We retain your data as long as you remain a member of our support group. This information is used to mail you our newsletter and information on our events.

What rights you have over your data

You can request that we erase any personal data we hold about you. This does not include any data we are obliged to keep for adminstrative, legal or security purposes. Requests to erase your data should be sent to phoenixostomy@gmail.com

Data Security

We have implemented measures designed to secure your personal information from accidental loss and from unauthorized access, use, alteration and disclosure. To protect our Website and your privacy we use a secure internet address and third-party apps. We use Akismet to detect spammers and we use Wordfence to protect against spammers and attacks. Your responsibility is to protect your personal information in public areas where it may be viewed or overheard by others. Public means Public. Unfortunately, the transmission of information via the internet is not completely secure. Although we do our best to protect you personal information, we cannot guarantee the security of your personal information transmitted to our Website. Any transmission of personal information is at your own risk. We are not responsible for circumvention of any privacy settings or security measures contained on our Website.

Changes to our Privacy Policy

It is our procedure to post any changes we make to this Policy on this page. If we make material changes to how we treat our users’ PII we will notify you through a notice on the Website. The last revised date will be noted at the top of this page. You are responsible for periodically visiting our Website and reviewing this Policy for updates.

Contact Information

Please direct all questions and comments about this Policy and our privacy practices to phoenixostomy@gmail.com.  

Rev. 10/2019